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ENGAGING IN ADVOCACY

For more inclusive social policies.

ENERGIZING AWARENESS

Of the needs of families of patients who battle chronic or life-threatening illnesses.

EMPOWERING PATIENT SUPPORT ORGANISATIONS

Through appropriate programmes and services.

ENABLING ACCESS

To information on optimal treatment options, care and support for chronically ill patients and their families.

Hearts, Hopes and Aims: A Singapore Rare Disease Impact Study

Hearts, Hopes and Aims: A Singapore Rare Disease Impact Study

Rainbow Across Borders will be embarking on an impact study to better understand the needs of rare disease patients and their caregivers in Singapore, with the intention to identify areas for community involvement and humanitarian solutions. This study will provide insights into the lives of the patients in Singapore, particularly their challenges and dreams.

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Inaugural Asia Pacific Lung Health Summit: A Patient′s Perspective

Inaugural Asia Pacific Lung Health Summit: A Patient′s Perspective

This event will be held on 14 - 15 October 2016 in Singapore. This Summit aims to connect patient leaders who work tirelessly for Lung Health in their home country, allowing them to exchange and network, share experiences and coordinate views for the region.

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Rare Disease Asia Conference 2016: Working In One Voice

Rare Disease Asia Conference 2016: Working In One Voice

17 - 19 November 2016, Kuala Lumpur, Malaysia. Themed “Working In One Voice”, the second Rare Disease Asia Conference will bring together stakeholders of the rare disease community in Asia and beyond.

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Together In One Voice: Rare Disease Day 2016

Together In One Voice: Rare Disease Day 2016

Together in One Voice will bring together members of the rare disease community in Singapore. This event hopes to raise awareness on rare diseases and their impact on patients’ lives. Join us in making the voice of rare diseases heard!

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PRINCIPLES OF HAEMOPHILIA CARE - A PATIENT′S PERSPECTIVE

PRINCIPLES OF HAEMOPHILIA CARE - A PATIENT′S PERSPECTIVE

This roundtable event aimed to connect experts in Haemophilia care and patient advocate leaders; allowing them to exchange and network, share experiences and coordinate views on the Principles of Haemophilia Care.

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RAB CAPABILITY SURVEY

RAB CAPABILITY SURVEY

This survey assessed the needs of 51 patient support organisations from the Asia-Pacific region and determined the best practices to be shared amongst them. The questions were designed to gauge organisational effectiveness in the areas of accountability, governance, trust and public profile.

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Working in One Voice

Working in One Voice

Working in One Voice, organised on 16 October 2015, was an evening which brought together patients, medical social workers, patient support organisations, physicians, medical professionals and pharmaceutical companies to share their views on the landscape of chronic illness and rare disease in the region.

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REGISTER AS A RAB AFFILIATE

REGISTER AS A RAB AFFILIATE

Rainbow Across Borders (RAB) is Asia′s first regional patient support group alliance. RAB aims to empower patient support organisations through appropriate programmes, services and training, while facilitating learning and experience exchange among the RAB affiliates.

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IDIOPATHIC PULMONARY FIBROSIS

A Community Project by Rainbow Across Borders and Boehringer Ingelheim. Pulmonary fibrosis (PF), the most common type of interstitial lung disease, is characterised by thick and stiff tissue that turns into scar tissue over time. Because of the increasing presence of scar tissue in the lungs, the organ is not able to properly transport oxygen into the bloodstream. When the blood does not get enough oxygen, symptoms result including shortness of breath; persistent, dry and hacking cough; fatigue; unexplained weight loss; aching muscles and joints; and clubbing of the fingertips.

LATEST HIGHLIGHTS

The most recent articles about Rainbow Across Borders and our events organised in partnership with our affiliates.

Together In One Voice

Date: April 11, 2016

In commemoration of Rare Disease Day 2016 on 28 February at Gillman Barracks, Singapore.

The coming together of 10 rare disease groups marked this years event. It was attended by 200 patients and their caregivers, as well as physicians, allied healthcare professionals, patient support organisations, pharmaceutical representatives and policy strategists from Singapore. Other event highlights include a kids′ play session at Playeum, the launch of World Through My Eyes - a regional photo exhibition and a focus group discussion for rare disease patients and caregivers.

Haemophilia Care: A Patient′s Perspective

Date: March 11, 2016

About one in 10,000 people are born with haemophilia. Most are not diagnosed and do not receive treatment. Standards of haemophilia care also differ widely across countries in Asia. We would like to change that.

Rainbow Across Borders brought together haemophilia patient groups from Thailand, Malaysia, Vietnam and Singapore at the Principles of Haemophilia Care Round Table Meeting in January. The aim was to discuss the Souther East Asian Principles of Haemophilia Care suggested by the Asia Pacific Haemophilia Working Group.

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