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THE RAB NETWORK

AUSTRALIA

Genetic and Rare Disease Network

Website: https://gardn.org.au/
Tel: (618) 9485 8999
Email: admin@gardn.org.au

Rare Voices Australia

Website: https://www.rarevoices.org.au
Tel: (61) 497 003 104
Email: info@rarevoices.com.au

HONG KONG

Hong Kong Mucopolysaccharidoses & Rare Genetic Diseases Mutual Aid Group

Website: http://www.mps.org.hk/en/index.html
Tel: (852) 2794 3010
Email: hongkongmpsgroup@gmail.com

Hong Kong Patients′ Voices

Website: http://www.hkpv.org
Tel: (852) 6287 8897
Email: hkpvoices@gmail.com

The Hong Kong Asthma Society

Website: http://www.hkasthma.org.hk/en
Tel: (852) 2895 6502
Email: hkas@hkasthma.org.hk

INDIA

Dystrophy Annihilation Research Trust

Website: https://dartindia.in
Tel: (91) 80 2341 2725
Email: supportus@dartindia.in

Organisation for Rare Diseases India (ORDI)

Website: http://www.ordindia.org
Tel: (91) 889 255 5000
Email: contactus@ordindia.org

Tamahar Trust

Website: http://tamahar.org
Tel: (91) 966 332 5766
Email: info@tamahar.org

INDONESIA

MPS Foundation and Rare Diseases of Indonesia

Website: https://penyakitlangkaindonesia.org/id

Yayasan Asma Indonesia

IRAN

Iranian Hemophilia and Thrombophilia Association MAHTA

Website: http://mahta.org.ir
Tel: (98) 21 8887 1840
Email: mahta@mahta.org.ir

JAPAN

Gaucher Disease Patients and their Families

Website: www.32.con.ne.jp/-megapon

J-Breath

Website: http://www.j-breath.jp
Tel: (81) 3 5981 1181
Email:

Japan Fabry Association

Website: http://www.fabrynet.jp/index.html

Japan Patients Association (JPA)

Website: http://nanbyo.jp
Tel: 03 6280 7734
Email: jpa@ia2.itkeeper.ne.jp

Japan Pompe House

MALAYSIA

Asthma Malaysia

Website: http://www.asthmamalaysia.org

Genetic Counselling Asia

Website: https://gc-asia.com
Tel: (60) 16 213 5423
Email:

Malaysia Lysosomal Diseases Association

Website: http://www.mymlda.com
Tel: (60) 019 689 9620
Email: info@mymlda.com

Malaysia Metabolic Society

Website: http://www.mms.my
Tel: (60) 013 390 1706
Email: info@mms.my

Malaysian Rare Disorders Society

Website: http://mrds.org.my
Tel: (60) 19 771 4543
Email: info@mrds.org.my

We Care Journey

Website: http://wecarejourney.org
Tel: (60) 12 522 5232
Email: hello@wecarejourney.org

PHILIPPINES

Hemophilia Association of the Philippines for Love and Service (HAPLOS) Foundation Inc.

Website: https://www.facebook.com/HAPLOS-Foundation-167350940011581
Tel: (632) 732 5085
Email: haplosfoundation@yahoo.com

New Vois Association of the Philippines, Inc.

Website: http://newvois.org
Tel: (63) 2 951 5555
Email: notoyosi@yahoo.com

Philippine Alliance of Patient Organizations

Website: http://www.papo.org.ph
Tel: (632) 376 3454
Email: 1voicepapo@gmail.com

Philippine Society for Orphan Disorders Inc.

Website: http://www.psod.org.ph
Tel: (63) 2 661 8935
Email: info@psod.org.ph

SINGAPORE

Muscular Dystrophy Association (Singapore)

Website: http://mdas.org.sg
Tel: (65) 6259 6933
Email: mdas@mdas.org.sg

Pulmonary Hypertension Singapore

Website: http://phsingapore.org
Tel: (65) 6748 0643
Email: admin@phsingapore.org

Rare Disorders Society (Singapore)

Website: http://www.rdss.org.sg
Tel: (65) 6402 2898
Email: info@rdss.org.sg

SOUTH AFRICA

Rare Diseases South Africa

Website: http://www.rarediseases.co.za
Tel: (27) 10 594 3844
Email: admin@rarediseases.co.za

SOUTH KOREA

Korean Organization for Rare Diseases

Website: https://www.kord.or.kr
Tel: (82) 2 714 5522/8338
Email: kord2003@hanmail.net

SPAIN

Lovexair Foundation

Website: http://lovexair.com
Tel: (34) 956 537 186
Email: info@lovexair.com

TAIWAN

Taiwan Alliance of Patients’ Organizations

Website: https://www.facebook.com/tapo.tw
Tel: (886) 2391 1792 #13
Email: tapo201501@gmail.com

Taiwan Foundation for Rare Disorders

Website: http://www.tfrd.org.tw/tfrd
Tel: (886) 4 2236 3595
Email: tfrd@tfrd.org.tw

THAILAND

National Hemophilia Foundation of Thailand

Website: http://www.thaihemophilia.org

Thai Rare Disease Foundation

Website: http://www.thairdf.com
Tel: (66) 95 397 5331
Email: thairaredisease.f@gmail.com

Thammasat University (TU) Asthma Club

Website: https://www.facebook.com/TU.AsthmaClub2014
Tel: (66) 2926 9139
Email: tuasthmaclub@gmail.com

UNITED KINGDOM

The Ultra Rare Disease, Disorders & Disabilities Foundation

Website: http://urddad-foundation.org.uk
Tel: (44) 289 543 9524
Email: terencehoey@urddad-foundation.org.uk

UNITED STATES

COPD Foundation

Website: https://www.copdfoundation.org
Tel: (1) 866 731 2673
Email: info@copdfoundation.org

VIET NAM

Vietnam Rare Disease Network



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