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2nd Rare Disease Asia Conference 2016
 2nd Rare Disease Asia Conference 2016

2nd Rare Disease Asia Conference 2016

 Stakeholders Panel - Building A Multi-Stakeholder Ecosystem

Stakeholders Panel - Building A Multi-Stakeholder Ecosystem

 Medical Panel - Definition & Challenges In Rare Disease Management

Medical Panel - Definition & Challenges In Rare Disease Management

 Keynote - Making Rare Diseases an Asian Health Priority - Prof Tarun Weeramanthri (Chief Health Officer, Department of Health, Government of Western Australia)

Keynote - Making Rare Diseases an Asian Health Priority - Prof Tarun Weeramanthri (Chief Health Officer, Department of Health, Government of Western Australia)

 Opening Speech - Mr Gregory Vijayendran (Chairman, Rainbow Across Borders)

Opening Speech - Mr Gregory Vijayendran (Chairman, Rainbow Across Borders)

 Conference Day 1

Conference Day 1

 Opening Speech - Dato Hatijah Ayob (Malaysian Rare Disorders Society)

Opening Speech - Dato Hatijah Ayob (Malaysian Rare Disorders Society)

 Opening Speech - Dato′ Hatijah Ayob (Malaysian Rare Disorders Society)

Opening Speech - Dato′ Hatijah Ayob (Malaysian Rare Disorders Society)

 Platinum Sponsor - Sanofi Genzyme

Platinum Sponsor - Sanofi Genzyme

 The Philippines Story - Dr. Carmencita Padilla (University of the Philippines Manila)

The Philippines Story - Dr. Carmencita Padilla (University of the Philippines Manila)

 Shire Networking Dinner - Making the Voice of Rare Diseases Heard in Asia

Shire Networking Dinner - Making the Voice of Rare Diseases Heard in Asia

 Conference Day 2

Conference Day 2

 The Impact Of Rare Diseases - Caron Molster (Deputy Director, Office of Population Health Genomics, Department of Health, Western Australia)

The Impact Of Rare Diseases - Caron Molster (Deputy Director, Office of Population Health Genomics, Department of Health, Western Australia)

 Understanding the Impact of Rare Diseases in Asia - AMICULUM

Understanding the Impact of Rare Diseases in Asia - AMICULUM

 Workgroup Discussion: Patient Support Organisations

Workgroup Discussion: Patient Support Organisations

 Workgroup Discussion: Pharmaceutical Representatives

Workgroup Discussion: Pharmaceutical Representatives

 Understanding a Rare Disease Registry - Prof Matthew Bellgard (Murdoch University, Australia)

Understanding a Rare Disease Registry - Prof Matthew Bellgard (Murdoch University, Australia)

 Workgroup Discussion: Patients & Caregivers

Workgroup Discussion: Patients & Caregivers

 Workgroup Discussion: Patient Support Organisations

Workgroup Discussion: Patient Support Organisations

 Participation in Healthcare Decision Making - Ms Cynthia Magdaraog (Philippine Society for Orphan Disorders, Philippines)

Participation in Healthcare Decision Making - Ms Cynthia Magdaraog (Philippine Society for Orphan Disorders, Philippines)

 Caring for the Caregiver - Dr. Shan Narayanan (Fatimah Hospital, Malaysia)

Caring for the Caregiver - Dr. Shan Narayanan (Fatimah Hospital, Malaysia)

 Communication Strategies for Rare Diseases: Uncommon Opportunities - Ms Jenny Putin (AMICULUM)

Communication Strategies for Rare Diseases: Uncommon Opportunities - Ms Jenny Putin (AMICULUM)

 Prof. Tarun Weeramanthri & Rajakanth R.

Prof. Tarun Weeramanthri & Rajakanth R.

 Overcoming the Impact of Rare Diseases - Dr. David Rintell (Head of Global Patient Advocacy, Rare Diseases Sanofi Genzyme, USA)

Overcoming the Impact of Rare Diseases - Dr. David Rintell (Head of Global Patient Advocacy, Rare Diseases Sanofi Genzyme, USA)

 Conference Round Up - Prof. Meow Keong Thong (University of Malaya Medical Centre, Malaysia)

Conference Round Up - Prof. Meow Keong Thong (University of Malaya Medical Centre, Malaysia)

 Working in One Voice

Working in One Voice

 Art Therapy Workshop: Feelings & Colours - Amanda Chen, Art Therapist (Singapore)

Art Therapy Workshop: Feelings & Colours - Amanda Chen, Art Therapist (Singapore)

 Art Therapy Workshop

Art Therapy Workshop

 Shire Rare Kids Discovery Booth

Shire Rare Kids Discovery Booth

 Caregiver Workshop: Release, Relax & Rejuvenate - Carol Cheng, Specialist Teacher (Singapore)

Caregiver Workshop: Release, Relax & Rejuvenate - Carol Cheng, Specialist Teacher (Singapore)

 The Art of Music Making - Carol Cheng, Specialist Teacher (Singapore)

The Art of Music Making - Carol Cheng, Specialist Teacher (Singapore)



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