Loading...
PUBLICATIONS

Journeying Through Life with Atopic Dermatitis

Illness Group: Dermatology
Publication Date: 25 Oct 2022

Patient, caregiver and physician views from the discussions have been compiled into this report - Journeying Through Life with Atopic Dermatitis - for dissemination to the public in order to raise awareness of AD and its impact on patients and their families, and at the same time, to promote policies and practices for a better health outcome and quality of life for them.

Hearts, Hopes and Aims: The Singapore Rare Disease Impact Study

Illness Group: Rare Disease
Publication Date: 28 Feb 2017

Hearts, Hopes and Aims: The Singapore Rare Disease Impact Study, is a comprehensive study to better understand the needs of rare disease patients and their caregivers in Singapore, with the intention to identify areas for community involvement and humanitarian solutions. This study will provide insights into the lives of the patients in Singapore, particularly their challenges and dreams.

With this, we will be able to bring together the many stakeholders in rare disease management to catalyse strategic solutions for the management and care of rare disease patients and their families. We believe that with our concerted effort, we will be that much more effective.

Together In One Voice

Illness Group: Rare Disease
Publication Date: 11 Apr 2016

In commemoration of Rare Disease Day 2016 on 28 February at Gillman Barracks, Singapore.

The coming together of 10 rare disease groups marked this years event. It was attended by 200 patients and their caregivers, as well as physicians, allied healthcare professionals, patient support organisations, pharmaceutical representatives and policy strategists from Singapore. Other event highlights include a kids′ play session at Playeum, the launch of World Through My Eyes - a regional photo exhibition and a focus group discussion for rare disease patients and caregivers.




© 2015 - 2022 Rainbow Across Borders | All rights reserved.