Illness Group: Rare Disease

Hearts, Hopes and Aims: The Singapore Rare Disease Impact Study, is a comprehensive study to better understand the needs of rare disease patients and their caregivers in Singapore, with the intention to identify areas for community involvement and humanitarian solutions. This study will provide insights into the lives of the patients in Singapore, particularly their challenges and dreams.

With this, we will be able to bring together the many stakeholders in rare disease management to catalyse strategic solutions for the management and care of rare disease patients and their families. We believe that with our concerted effort, we will be that much more effective.

Details

Hearts, Hopes and Aims: The Singapore Rare Disease Impact Study, is an initiative by Rainbow Across Borders, with community partner, Rare Disorders Society (Singapore) and content partner, AMICULUM.

This impact study will feature patient stories highlighting 18 or more rare disease conditions, which have been identified in Singapore. This is in line with the international Rare Disease Day 2017 theme ‘Research’, and slogan “With research, possibilities are limitless”.

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