Illness Group: Across Illness Groups

Rainbow Across Borders initiated this capability survey to assess Asia Pacific patient support organisations′ needs and determine the best practices to be shared amongst them, as we realised many groups were keen to share and learn best practices from their counterparts in the region. The questions were designed to gauge organisational effectiveness in the areas of accountability, governance, trust and public profile, as well as to help determine the areas which we need to focus on collectively in 2016.

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Rainbow Across Borders (RAB) is Asia’s first regional patient support group alliance which promotes regional collaboration and networking among patient support organisations. RAB aims to empower patient support organisations through appropriate programmes, services and training, while facilitating learning and experience exchange among the RAB affiliates. Through our interaction and work with various patient support organisations, we realised many groups were keen to share and learn best practices from their counterparts in the region. In response, RAB initiated this capability survey to assess patient support organisations′ needs and determine the best practices to be shared amongst them. The questions were designed to gauge organisational effectiveness in the areas of accountability, governance, trust and public profile, as well as to help determine the areas which we need to focus on collectively in 2016. Through this, we believe the interests of our beneficiaries can be further advanced. A total of 51 patient support organisations and groups from 11 countries participated in the survey. These groups serve patients with a range of illness from cancer, diabetes, rare disease to neurological and cardiovascular diseases. The consolidated survey results were shared with all participants via an email and at the Partners In Patient Health Forum on 16 October 2015 in Singapore.

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