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Haemophilia Care: A Patient′s Perspective

| Pages 1-6 |

Illness Group: Rare Disease

In commemoration of Rare Disease Day 2016 on 28 February at Gillman Barracks, Singapore.

The coming together of 10 rare disease groups marked this years event. It was attended by 200 patients and their caregivers, as well as physicians, allied healthcare professionals, patient support organisations, pharmaceutical representatives and policy strategists from Singapore. Other event highlights include a kids′ play session at Playeum, the launch of World Through My Eyes - a regional photo exhibition and a focus group discussion for rare disease patients and caregivers.


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