KAWASAKI DISEASE - WHEN IT′S NOT JUST A FEVER
Date: 26 Jan 2017
Jan 26 is International Kawasaki Disease Awareness Day. And we, the Kawasaki Disease Support Group Singapore - a parent-led, voluntary group - want to talk about the symptoms so that more parents, caregivers and even those in the medical community recognize it. Timely treatment - within a 10-day window - is critical for KD. There are over 200 cases of KD a year in Singapore. We don′t know what causes it but it affects Asians disproportionately.
RARE DISEASE ASIA CONFERENCE 2016
Date: 17 – 19 Nov 2016
The 2nd Rare Disease Asia Conference 2016, 17-19 November, Kuala Lumpur Malaysia remains a key platform for the rare disease network in Asia with a focus on patient centric outcomes. More than 35 patient organisations from 16 countries came together in one voice to focus on Making Rare Diseases an Asian Health Priority, with a commitment to understand the impact of rare diseases, in particular, the needs of the patient and caregiver, the patient organisation and the community that supports their integration in society.
IDIOPATHIC PULMONARY FIBROSIS
Date: 16 Nov 2016
A Community Project by Rainbow Across Borders and Boehringer Ingelheim.
Pulmonary fibrosis (PF), the most common type of interstitial lung disease, is characterised by thick and stiff tissue that turns into scar tissue over time. Because of the increasing presence of scar tissue in the lungs, the organ is not able to properly transport oxygen into the bloodstream. When the blood does not get enough oxygen, symptoms result including shortness of breath; persistent, dry and hacking cough; fatigue; unexplained weight loss; aching muscles and joints; and clubbing of the fingertips.